Swiss Childhood Cancer Survivor Study
Swiss Childhood Cancer Survivor Study
The Childhood Cancer Registry (ChCR) is a national registry that records cancer in children and adolescents. To celebrate the 50th anniversary of the ChCR, a scientific symposium: “50 Years of Childhood Cancer Registration: Past, Present, and Future” will be held…
Many childhood cancer survivors do not attend regular hearing check-ups, although certain treatments can affect hearing in the long term. Our study therefore explored whether free hearing tests in hearing aid shops could provide a practical alternative to follow-up care…
Childhood cancer survivors face a higher risk of skin cancer, especially if they had radiotherapy or stem cell transplants. Their previous medical treatments often leave their skin highly sensitive. Therefore, strict sun protection and annual skin examinations are absolutely essential.…
This study focused on healthy lifestyles of adults who had cancer during childhood. It looked at how healthy lifestyles — such as eating well or being physically active — varied between survivors who received more or less heart-damaging cancer treatments.…
The study examined how often breathing symptoms during exercise occur after cancer in childhood and adolescence, and what factors might be contributing. This is important because physical activity after cancer helps strengthen health and supports well-being. When such symptoms make…
We aim to bring our research closer to childhood cancer survivors and their families. Participants can actively help shape the study to ensure that the research questions better reflect their interests and needs We sat down with 12 SCCSS participants…
This study aimed to find out how common dental problems are among children and teenagers who survived cancer and whether certain cancer treatments increase this risk. By comparing their dental health with that of their siblings who never had cancer,…
The international PanCareSurFup study aimed to examine whether people who had cancer during childhood are at increased risk of developing colorectal cancer later in life. The goal was to find out whether certain cancer treatments influence this risk, and whether…
This international study investigated whether women who were treated with certain chemotherapies in childhood have a higher risk of developing breast cancer later in life. The insights gained from this study can be used to detect and treat breast cancer…
Following the German version, the French and English versions of our explanatory videos are now also online. The short clips provide insights into our projects and show what research into the late effects of paediatric cancer is all about –…
After childhood cancer, late effects such as problems with bones, joints, and muscles can occur and make everyday life more difficult. Examples include osteoporosis (fragile bones), joint pain, or when one leg is shorter than the other. This study aimed…
This study investigated the health problems experienced by people who had Langerhans cell histiocytosis (LCH) in childhood. The health issues of survivors were then compared with those of their siblings. Although LCH is not a cancer, the disease and its…
Although childhood cancer treatments primarily target cancer cells, they can also damage healthy cells. Because of this, and sometimes also due to a genetic predisposition, survivors have an increased risk of developing another tumor later in life. This international study…
Are you curious to learn more about our current research projects? We’ve created short videos to give you an insight into our work. These videos cover our overarching health survey of former childhood cancer patients (SCCSS Study), as well as…
This study aimed to determine how many childhood cancer survivors are exposed to cigarette smoke at home and whether this contributes to respiratory problems, such as chronic cough, asthma. The study highlights the increased vulnerability of some children to respiratory…
In this study we investigated how often adults who had acute lymphoblastic leukemia (ALL) as children experience weight problems and whether these issues vary between Switzerland and North America. By understanding these challenges, doctors can provide better support, promoting healthy…
No research, no cure In Switzerland, around 350 children and adolescents are diagnosed with cancer every year. While innovative therapies are revolutionizing the world of adult oncology, young patients are still being treated with drugs that in some cases have…
Information and exchange event with paediatric cancer organisations In January, the Childhood Cancer Research Group invited representatives from the field of childhood cancer to an information and exchange event at the Institute of Social and Preventive Medicine at the University…
Many people who survived childhood cancer in Switzerland continue to experience extreme tiredness, known as fatigue, well into their adult years. This study investigated how common this exhaustion is and which specific groups of survivors are most likely to be…
Lay Summary of Luzius Mader’s Study What was the aim of our study?The diagnosis of childhood cancer and the difficult treatment are a great challenge for the children affected. Children often feel the consequences years later. We wanted to find…