What is the SCCSS?
SCCSS is short for Swiss Childhood Cancer Survivor Study, a national questionnaire study. Survivors and their siblings receive a baseline questionnaire as well as follow-up questionnaires with questions regarding their current health and quality of life. The goal is to study long-term effects of childhood cancer on survivors and their families.
The SCCSS is conducted by the Childhood Cancer Research Group, which is part of the Institute of Social and Preventive Medicine (ISPM) at the University of Bern. Established in 2007 by Prof Claudia Kuehni, MD and Prof Nicolas von der Weid, MD, the SCCSS collaborates closely with the Swiss Childhood Cancer Registry and the pediatric oncology clinics in Switzerland.
News
15th of February International Childhood Cancer Day
No research, no cure In Switzerland, around 350 children and adolescents are diagnosed with cancer every year. While innovative therapies…
SCCSS Dialog 2024
Information and exchange event with paediatric cancer organisations In January, the Childhood Cancer Research Group invited representatives from the field…
Higher breast cancer risk after certain forms of childhood cancer treatment
Women who have been treated for cancer as a child with a certain type of chemotherapy have an increased risk…
Current Research Projects
Cardiovascular Late Effects after Childhood Cancer
The CardioOnco Study aims to detect heart problems early and to investigate possible risk factors.
Community-based screening program for hearing loss after childhood cancer
This project evaluates a novel, low-threshold access to hearing tests for former patients.
Pulmonary late effects after childhood cancer
We analyse lung function tests that are routinely performed in the clinical follow-up care of children and adolescents who survived cancer.
Voices from study participants
Reasons why they participated
En fait, j’ai toujours eu l’impression que chacun autour de moi faisait le 100 % voire même plus.
Si l’on me demande de consacrer un petit peu de temps pour renvoyer l’ascenseur – et cela permet, d’une façon ou d’une autre, d’améliorer le quotidien des gens qui sont malades actuellement ou qui le seront plus tard voire empêcher des complications ultérieures, – c’est une chose que je fais volontiers.
Bei mir sind in letzter Zeit mehr Fragen aufgekommen.
Was für Langzeitwirkungen hatte meine Krankheit als Kind auf mich? Die Teilnahme hat für mich wie eine Türe geöffnet zu euch oder zu Forscherteams, um selbst am Schluss Informationen zu bekommen. Vielleicht ist jetzt auch genug Zeit vorbei, dass ich auch etwas zurückgeben kann.
Funding
We would like to thank the Swiss Cancer League , Swiss Cancer Research, Childhood Cancer Switzerland, Stiftung für krebskranke Kinder, Regio basiliensis and Kinderkrebshilfe Schweiz for their financial support of the SCCSS.
