What is the SCCSS?

Thanks to the enormous progress in medicine in recent years, most children diagnosed with cancer can be cured today. Most former patients are in very good health. However, the disease and its treatment may leave some former patients with mild to severe health problems.

Detailed knowledge about health problems after cancer is the basis for improving treatments, follow-up care, and social support measures. It is therefore important to know more about how childhood cancer survivors are doing many years after their diagnosis.

The Childhood Cancer Research Group at the Institute of Social and Preventive Medicine (ISPM) at the University of Bern conducts the Swiss Childhood Cancer Survivor Study (SCCSS). The SCCSS studies the long-term effects of childhood cancer for patients and their families. It was established in 2007 by Prof. Claudia Kuehni and Prof. Nicolas von der Weid. The study has been conducted in close collaboration with the Childhood Cancer Registry and the pediatric oncology clinics in Switzerland.

Over the years, many former childhood cancer patients have contributed to the study. Thanks to this tremendous support, we have been able to contribute important knowledge required for improving the situation of childhood cancer survivors. We are looking forward to doing so in the future.


We would like to thank the Swiss Cancer League , Swiss Cancer Research, Childhood Cancer Switzerland, Stiftung für krebskranke Kinder, Regio basiliensis and Kinderkrebshilfe Schweiz for their financial support of the SCCSS.