What is the SCCSS?
SCCSS is short for Swiss Childhood Cancer Survivor Study, a national questionnaire study. Survivors and their siblings receive a baseline questionnaire as well as follow-up questionnaires with questions regarding their current health and quality of life. The goal is to study long-term effects of childhood cancer on survivors and their families.
The SCCSS is conducted by the Childhood Cancer Research Group, which is part of the Institute of Social and Preventive Medicine (ISPM) at the University of Bern. Established in 2007 by Prof Claudia Kuehni, MD and Prof Nicolas von der Weid, MD, the SCCSS collaborates closely with the Swiss Childhood Cancer Registry and the pediatric oncology clinics in Switzerland.
News
Explanatory videos for our research projects are now online
Are you curious to learn more about our current research projects? We’ve created short videos to give you an insight…
Parental Smoking and Lung Health in Childhood Cancer Survivors
This study aimed to determine how many childhood cancer survivors are exposed to cigarette smoke at home and whether this…
Overweight and obesity after childhood acute lymphoblastic leukemia
We investigated how often adults who survived acute lymphoblastic leukemia (ALL) as children experience weight problems and whether these issues…
Current Research Projects
Cardiovascular Late Effects after Childhood Cancer
The CardioOnco Study aims to detect heart problems early and to investigate possible risk factors.
Community-based screening program for hearing loss after childhood cancer
This project evaluates a novel, low-threshold access to hearing tests for former patients.
Pulmonary late effects after childhood cancer
We analyse lung function tests that are routinely performed in the clinical follow-up care of children and adolescents who survived cancer.
Voices from study participants
Reasons why they participated
En fait, j’ai toujours eu l’impression que chacun autour de moi faisait le 100 % voire même plus.
Si l’on me demande de consacrer un petit peu de temps pour renvoyer l’ascenseur – et cela permet, d’une façon ou d’une autre, d’améliorer le quotidien des gens qui sont malades actuellement ou qui le seront plus tard voire empêcher des complications ultérieures, – c’est une chose que je fais volontiers.
Bei mir sind in letzter Zeit mehr Fragen aufgekommen.
Was für Langzeitwirkungen hatte meine Krankheit als Kind auf mich? Die Teilnahme hat für mich wie eine Türe geöffnet zu euch oder zu Forscherteams, um selbst am Schluss Informationen zu bekommen. Vielleicht ist jetzt auch genug Zeit vorbei, dass ich auch etwas zurückgeben kann.
Funding
We would like to thank the Swiss Cancer League , Swiss Cancer Research, Childhood Cancer Switzerland, Stiftung für krebskranke Kinder, Regio basiliensis and Kinderkrebshilfe Schweiz for their financial support of the SCCSS.
