What is the SCCSS about?
Cancer treatments are intensive. After successful treatment, survivors may experience health problems (such as hearing problems, growth deficits, psychological distress) or problems in school. More detailed knowledge about late effects after cancer will help to optimize the treatment of newly diagnosed children in the future, but also to improve the medical care of survivors and to offer social support measures.
For these reasons, the SCCSS investigates the late effects that childhood cancer survivors may experience and how frequent they are. We also want to find out which cancer treatments may increase the risk of late effects. Additionally, we explore whether cancer has an impact on later quality of life and the social situation of former patients.
Who can participate?
The SCCSS invites all former patients who had cancer before the age of 20 years in whom at least 5 years passed since they were diagnosed.
What data is collected?
Persons who agree to participate receive a questionnaire that collects information on their current state of health, quality of life, and potential late effects.
In addition, we also reuse health-related data that has been collected previously. This includes data from:
- the Swiss Childhood Cancer Registry,
- medical records from hospitals or physicians,
- routine statistics from federal institutions, and
How long does the study last?
The SCCSS is an ongoing research program that continuously includes new participants and accompanies them during the lifetime.
Where can I find the results?
The data of the SCCSS are continuously analyzed. The results are published in scientific journals and our publications are also accessible he this website. Short summaries of these publications in everyday language are developed for each publication.