The questionnaire surveys include a detailed baseline questionnaire and shorter follow-up questionnaires.
Baseline questionnaire
The first questionnaire is our longest questionnaire. All former childhood cancer patients receive it 5 or more years after their cancer diagnosis. It asks about their former cancer, their current state of health, quality of life, health behavior, health care use, and psychological as well as social aspects such as experiences at school or work.
The baseline questionnaires are available in German, French, and Italian. Three different versions exist that are adapted to the survivors current age:
- Adult version: Survivors aged at least 20 years receive the questionnaire for adults that they can complete on their own.
- Adolescent version: Survivors aged between 16-19 years receive a questionnaire tailored to their age that they can complete on their own.
- Parent version: For survivors younger than 16 years, we ask their parents to complete the questionnaire on behalf of their child. The child can complete a short questionnaire on quality of life and behaviours.
In the baseline questionnaire, we also ask all survivors if we can contact their siblings. The siblings then receive an adapted version of the questionnaire. The information from the siblings allows us to compare the health and quality of life of survivors with persons without a cancer history.
Follow-up questionnaires
The follow-up questionnaires are shorter and, as the name suggests, follow up on important questions from the baseline questionnaire. They may also cover certain topics more thoroughly, such as nutrition. The primary goal of these questionnaires is to find out how survivors’ health and quality of life change over time. The follow-up questionnaires are typically sent at intervals of a few years.
If you have questions about our surveys, please check our page on frequently asked questions and their answers.